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Diagnosed at age five, Shannon was Tennessee's Easter Seals poster child in 1975. At 10 he was doing flips on his crutches, and four years later took up skateboarding (he got arrested for protesting a boarding ban in Pittsburgh in 1988). In his mid twenties, when the disease intensified, he combined the skateboard with the crutches as a way of covering the long, flat blocks of Chicago, where he took interdisciplinary courses at the Art Institute. Today, Shannon's performances merge urban skater culture with a theatrical sense of narrative. Last year Cirque de Soleil asked him to perform in their new production, Varekai. He declined: "I couldn't do it because it would take me off the street and there are days I can't go on stage because of my hips." Instead, he offered to choreograph. Bravo has been airing a documentary, Fire Within, that includes Shannon's work with the performers.
His moniker, "Crutchmaster," refers to his skillful maneuvers, but also reflects his knowledge of the devices. His crutches, self-designed, transform "rocker-bottoms," which were created in 1917 as a way of increasing stride length, resulting in a smoother gait and more secure contact with the ground. Shannon adds high-pressure fuel hose from an auto shop$20 a yard, "which makes four tips"to the bottom of each crutch to make it more "grippy."
"I rebuild leftover ones, inserting new parts and modifications to get them where they are now," he explains, admitting that he has 100 pairs. "People give them to me, and I find them in the garbage. The ones I use now are a whole different grade of aluminum tubingI started out doing sculpture so I know about grades." He also replaces the plastic hand-bars with wooden ones to prevent cracking. "I made a pair out of titanium onceit's strong but flexyworking with an engineer at San Francisco's Exploratorium. We put in shock absorbers." He still has those. "Now I'm ready for the next level of design, but it takes a lot of money." Cirque de Soleil's engineering team worked with Shannon to develop a prototype for the performer in the show who uses crutches.
Most people watching Shannon think he's healthy, or, as he puts it, "They don't have the nerve to say, 'Are you or aren't you?' " He moves on crutches, a condition that confuses those who associate the devices with temporary injury instead of lifelong disease. Using the crutches and skateboard "slows down the process of deterioration" in his hips, he says. "The right one is more damaged than the left, but both are deformed."
What does the pain feel like? "I have this vision of a solid white chalk ball. There's this small mass of nerves at the center. That is the pain I can never get at. The reason why this image is so real to me is because of the impossibility of feeling through chalk. It's a sharp pain surrounded by dullness. But this vision is healing. . . . I think about cracking the ball to massage the center."
On the street, Shannon wears headphones. "I listen to music constantly," he says. "It helps me forget. I consider music fuel." At home, his studio is dominated by two large speakers, turntables, and "a couple hundred gigs of storage." He also keeps a television, computer, and video editing/graphics workstation hooked up to review his street performancesor rather, people's reactions to him on the street.
Shannon describes a common scenario. "I'm entering some locationsay, a cafeteriaand people see that I'm on crutches. That condition has certain associations. Let's say someone makes a big commotion in clearing a row for me to pass by. But what if I didn't intend to go in that direction? People make assumptions based on strictly visual consumption of my conditionwithout verbal communication with me. I call that "condition arriving"the condition arrived but I didn't. I have this ghost-like presence that people see. I think it's something a lot people with physical disabilities experience."
People often get annoyed if he rejects their assistance. "There are the disabled who are thankful to everyone who offers to help. I'm representing this no-man's-land between the efforts of Good Samaritans and my own dexterity. When my condition precedes me it can be maddening."
Onstage, Shannon finds freedom. His shows are like dance inverted: "If you see a dancer running across the stage, arms waving in the air, you would see me running across the room with my legs waving in the air. The distribution of my weight gives the visual appearance as if someone was on their head watching me dance. The style of the dancing conceals the fact that most of the weight is on my shoulders."