Nicholas was demonized by protesters, who compared him to a Nazi war criminal. But many people in the HIV community see Nicholas as a trail-blazer who took action in a time of crisis.

Sharman Stein, the ACS spokeswoman, stresses that it was a tense and chaotic time in which everyone did their best.

As a result of the trials, 15 medications were approved by the FDA for use with children, but what is less well known is that five other drugs were used in trials and some were never submitted for FDA approval, says Ross. That suggests the drugs were ineffective or even caused harm. (Submitting drugs to the FDA for approval is very expensive—companies only bother if they believe they'll be successful.) The problem is, we'll never know. While there's no doubt that the trials at Incarnation and other sites in the city benefited science and public health, it's also probable that some drugs did harm children. (Information about how the studies were conducted, including the harm to the subjects, is often considered proprietary by pharmaceutical companies.)

The Institute's report is more than 500 pages long, with dozens of appendixes. While some of the research examines what happened to the 25 children who died during the trials, most of the report discusses the effects of the trials on all 532 children who were enrolled. The Institute could say it found "no hard evidence" that the children's deaths were caused by medication, and because the children who did die were already very sick, the statistical risk of death from medicine was extremely low. Without medical records, they could conclude little about the overall effects on the children.

"We did see side effects. Did we see every side effect? Almost certainly not," says Ross. "Because without access to the records, it's impossible. . . . Did we catch every toxicity by looking at the child welfare files? That is not likely. The child welfare files were not complete. The type of information about the levels of toxicity would have been in the medical records."

After working on the study for two years, ACS and the Vera Institute made several attempts to get the state to release the children's records.

In September 2007, the general counsel of ACS, Joseph Cardieri, wrote a two-page letter to Thomas Conway, the general counsel at the New York State Department of Health, in which he said he was writing about "an issue of great importance to the City of New York." He explained the reasons that ACS was allowing the Vera Institute to investigate, and wrote, "We believe that it is critically important that Vera get an opportunity to review the hospital records of these children, as including such information would provide a clear picture of the health of these children and the progress they made while participating in the clinical trials. . . . We feel that without this information, Vera's final analysis will be incomplete."

Two months later, Conway replied. In a terse, three-paragraph letter, Conway wrote that it was impossible to justify giving away patients' medical records to a third party that is not a health provider. Conway said it would violate the special confidentiality protections that surround HIV/AIDS. "We hope you will understand our constraints," he wrote.

More letters were exchanged, and ACS asked for copies of the records stripped of identifying information. When that request was denied, ACS simply asked the state if it would go into the files and check for consent forms. But the state's health department would not budge.

Both Conway and Thomas declined to discuss their legal strategies or reasoning in an interview for this article. But Catherine O'Neill, a senior attorney and AIDS law specialist at the Legal Action Center in New York, says she has never heard of a situation in which HIV/AIDS medical records were released to a third party. She adds that under current law, a person's records on HIV can be released only with their consent.

"We said, 'Can you just confirm that consent forms are on file for all the kids?' " says Rick Dudley, a member of the Vera Institute's advisory board and a former medical director of the Washington Heights–West Harlem Community Mental Health Center. "They wouldn't do that. It was frustrating," he says. "We felt it would leave people unrelieved—with a feeling that there is something to cover or something to hide."

Council member Bill de Blasio tells the Voice that he isn't satisfied with the state's answer and that, within the next few months, he plans to sponsor a bill requiring the state to release the records to Vera. "If you push, there's always a way," de Blasio says.

Liam Scheff, meanwhile, continues to promote his story and resents questions about his motives.

Scheff says that news organizations, like the Voice and the Times, and nonprofits, like Vera, are in what amounts to a giant conspiracy to silence criticism of the AIDS industry. As he explained in an e-mail, "What is the Vera Institute? A legal body? No, its function here has been that of a PR firm; they put out an absolution so that nobody ever gets to find out."

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2 comments
poetx9
poetx9

Careful examination of the "dissident" (rather than "denialist") positions on HIV/AIDS shows that they are more accurate and scientifically true than the bogus garbage the public has been force-fed from the "medical" establishment since the beginning of this tragedy of errors.

"HIV causes AIDS" is simply not proven, has never been. The original claim, "HIV is the probable cause" lost the word "probable" and was pounded into public acceptance with the help of a NY Times reporter who was also an employee of the CDC which sponsored that original lie. (When the papers used to support this claim were published AFTER the news conference by Robert Gallo and Margaret Heckler, the papers show HIV presence in a mere 36% of the group being studied. Why was this never questioned and exposed?)

The unreliability of the "HIV test" is obvious when taking into consideration the dozens, as many as 100 or more, causes for a "false positive." The inherent discrimination of the test is obvious to at least one gay man, myself, whose positive test over 15 years ago was never once investigated or considered such a "false positive." The test is meant to instill fear and encourage those who may already have minor but measurable health issues to take toxic and eventually lethal drugs, pure and simple.

That our American health system is a military-modeled organization means that orders and information flow only in one direction, from the top down. This explains why respected and knowledgeable scientists such as Kary Mullis and Peter Duesberg, both of whom have clearly and scientifically shown the holes in the mainstream web of lies and misinformation, have been ridiculed and shunned for their courageous stand on this issue.

Even without the extensive research I've done, later than I wish I had, I know firsthand that HIV does not cause AIDS. I've been supposedly "positive" for at least fifteen years with zero AIDS-related illness or symptoms. Friends and acquaintances who have taken "AIDS drugs" have died, been maimed (hip replacement is certainly maiming) and are being used to shift gross amounts of money from insurance companies and charity organizations into the bank accounts of the murderous pharmaceutical industry. There is no shame on luxury vacation flights, of course. That those who benefit and profit from this think they are being helpful and benevolent is no excuse for murder-by-medicine.


ElizabethEly
ElizabethEly

"Council member Bill de Blasio tells the Voice that he isn't satisfied with the state's answer and that, within the next few months, he plans to sponsor a bill requiring the state to release the records to Vera. "If you push, there's always a way," de Blasio says."

Now that he's been elected mayor, are you going to call him up and follow up on that promise?  Where is the bill he sponsored "in the next few months"?  Nobody could find the resolution he announced he'd filed when the Vera report came out, either.  Would appreciate your looking into that, Elizabeth Dwoskin.  Because no, the AIDS Babies as Guinea Pigs Story is Not Finally Over.  It's barely begun to be told.

 
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